Welcome to the National Disease Registration Service

The National Disease Registration Service (NDRS) collects data on patients with cancer, congenital anomalies and rare diseases.

This data is used by NHS clinical teams to help plan and improve treatments and healthcare in England. It also helps academics and charities with research and policy making.

The NDRS is split into two disease registers:

• NCRAS – National Cancer Registration and Analysis Service
• NCARDRS – National Congenital Anomaly and Rare Disease Registration Service

On 1 October 2021, as part of the government’s strategy to transform the public health system in England, responsibility, and management of a variety of data collections and services transferred from Public Health England (PHE) to other NHS bodies. The responsibility for the management of the National Disease Registration Service, transferred from PHE to NHS Digital on 1  October 2021. NHS Digital became the data controller for this data.

NDRS’ and NHS Digital’s data, capability and technical expertise will provide significant benefits for patients, clinicians, and the wider health and social care system over coming years by providing a more comprehensive data service for the NHS. There has been minimal change to current processes from 1 October and all communication channels have been maintained. If you have any questions about the transition please contact us at NDRSenquiries@nhs.net.

If you do not want us to collect this information you can opt-out of the cancer, rare disease or congenital anomaly registry. More information on your rights and how to opt-out can be found here.