Welcome to the National Disease Registration Service

The National Disease Registration Service (NDRS) collects data on patients with cancer, congenital anomalies and rare diseases.

This data is used by NHS clinical teams to help plan and improve treatments and healthcare in England. It also helps academics and charities with research and policy making.

The NDRS is split into two disease registers:

  • NCRAS – National Cancer Registration and Analysis Service
  • NCARDRS – National Congenital Anomaly and Rare Disease Registration Service

From 1st October 2021, National Disease Registration Service (NDRS)  will be transitioned from Public Health England into NHS Digital as part of the ministerial decision in February 2021 to reform the public health system. This will not change any of the services delivered by NDRS and we will continue to collect information on cancer, rare diseases and congenital anomalies. At the current time we are working closely with NHS Digital to make the transition as smooth as possible for the service, staff and stakeholders. If you have any questions about the transition please contact us at NDRSengagement@phe.gov.uk.

If you do not want us to collect this information you can opt-out of the cancer, rare disease or congenital anomaly registry. More information on your rights and how to opt-out can be found here.