Who we work with
We work with clinicians, academics and charities by providing data and carrying out analysis for research projects. We work in partnership to help to advance research and improve patient outcomes.
Find out more about the data we collect and our outputs in our guide to cancer data and working with us.
If you think the information we hold could be useful for your work, please get in touch with us here.
Case study: NDRS and NHS Digital Partnership
We manage many different datasets that hold information on cancer, rare diseases and congenital anomalies. These can be linked to datasets held by the NHS to have a greater impact.
Our analysts are working with NHS Digital to securely link NDRS cancer data with NHS Digital datasets. This helps the NHS to understand the impact of COVID-19 on the healthcare system. With this information the NHS can plan cancer services that have been affected by COVID-19.
The partnership aimed to investigate questions such as:
- how has cancer management changed in response to the pandemic?
- what are the reasons for changes in the management of individual patients?
- what effect do these changes have on patient outcomes?
- what are the risks of COVID-19 infection and death for patients having cancer treatment during the pandemic?
We also worked with NHS Digital to produce The Shielded Patient List. The Shielded Patient List identifies individuals who are at high risk if they tested positive for COVID-19. This helps these individuals receive the right advice about extra precautions they may need to take.
You can read more about the Shielded Patient List here.
For more examples of how we have worked with others to help improve patient outcomes, read out Data Stories here.
Webpage last updated: August 2021