Get in touch

Please see our responses to Frequently Asked Questions (FAQs) here.  

Please use the contact page form for: 

  • general enquiries about cancer, rare disease and congenital anomaly registration and our work  
  • ordering patient leaflets about Cancer Registration 

Whilst all online forms are submitted directly to an encrypted mailbox it is not guaranteed to be secure. Any personal information (for example date of birth, address or NHS number) is sent via email at your own risk. If you would prefer not to send personal information by email, please provide an outline of the nature of your query or feedback along with the best way to contact you and a member of the team will be in touch shortly.


To opt-out of cancer, rare disease or congenital anomaly registration, please send an email to Find out more about opting-out here. 

To see what data the National Disease Registration Service (NDRS) holds on you, you can make a Subject Access Request. Find out more about how to make a Subject Access Request here.

Webpage last updated: October 2021
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