Get in touch

Please see our responses to Frequently Asked Questions (FAQs) here.  

Please use the contact page form for: 

  • general enquiries about cancer, rare disease and congenital anomaly registration and our work  
  • ordering patient leaflets about Cancer Registration 


To opt-out of cancer, rare disease or congenital anomaly registration, please send an email to Find out more about opting-out here. 

To see what data the National Disease Registration Service (NDRS) holds on you, you can make a Subject Access Request. Find out more about how to make a Subject Access Request here.

Webpage last updated: October 2021
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