For Clinicians

How patient data can help you

Clinicians and commissioners have been using anonymised patient data in England for many years. This information, which is collected by the National Disease Registration Service (NDRS), can help you plan patient care and improve treatments.

We collect, quality assure and safely store information on patients in England with cancer, rare diseases and congenital anomalies. Doctors, healthcare teams and researchers can access this information securely and use it to improve patient care.

Dr Zoe Venables, Dermatology consultant at Norfolk and Norwich University Hospital and Dermatology Clinical Lead at the National Cancer Registration and Analysis Service says:

“The unique and world leading high quality national population level data provides essential information to audit, analyse and develop epidemiological research, public health programme planning, and patient care.

As a dermatologist working with the cancer registry, we have developed national reports on skin cancer incidence providing epidemiological data for very common non-melanoma skin cancers as well as rare and more aggressive skin cancers. These are not routinely reported in most national registries. We were able to describe insights into incidence trends and geographical variation.”

By collecting and sharing data from patients in a secure way, we can help clinical teams to understand their practice. Using this information, clinicians can deepen their understanding of the diagnosis and treatment of their patients and improve patient outcomes.

Webpage last updated: August 2021

What data is collected

And how we make it easy for you

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Keeping the
data safe

Putting security and confidentiality first

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Publications and reports

Keep up to date with our work

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