What data is collected

And how we make it easy for you

The National Disease Registration Service in PHE needs as much high-quality data as possible to be effective and, therefore, it is important to make it as easy as possible for clinical teams to provide it. The Registration Service tries to make sure that it’s as quick and easy as it possibly can be for you or someone from your team to transfer the data via the secure NHS network. Once the data has arrived, it’s the job of the Registration Service to quality assure it and convert it to a format that can be accessed simply and reliably.

The data is sourced from a collection of nationally approved datasets including the Cancer Outcomes Services Dataset (COSD), the Systemic Anti-Cancer Therapy (SACT) Dataset, the Radiotherapy Dataset (RTDS) and also data from the national cancer audits – for a full list click here. The data is registered in near real-time, coded, classified and quality assured by highly trained staff working in eight teams at secure sites across England.

There are many outputs from the data that is collected by the National Cancer Registration Service. These include: NHS England’s Cancerdata and Atlas of variation; clinical audits in lung, breast and prostate cancer; national statistics from the Office of National Statistics and Cancer Alliance; and provider performance measures.  Additionally, the Registration Service is working with the Cancer Vanguards on new ways to visualise a patient’s care pathway through every multi-disciplinary team meeting which will help doctors see at a glance the care their patient has received.  Ultimately, this sort of information will also be available to all patients who have been diagnosed with cancer, so they’ll be able to see their own care history in a way that’s both simple to use and secure.