How data is used

The benefits of data driven healthcare

The National Cancer Registration Service and the data it holds, is making a significant contribution to the way that cancer is diagnosed and treated.  The Cancer Registry can see the numbers and types of cancers across England, how this varies and is changing over time – this helps the NHS to plan cancer services. The data it gathers is also helping to measure the effectiveness of drugs and, in some cases, can help predict who might get the disease because of their family history. The more data that is collected, the more people that the Cancer Registry can help in the future.

As well as using the data to conduct our own research we often share information with organisations like The Office for National Statistics and The National Institute for Health and Care Excellence. The Cancer Registry works with all the main UK cancer charities, many of whom fund their own research projects.

Because the information held by the National Cancer Registration Service is personal and confidential our information governance experts ensure data is only released in the correct way to appropriate individuals and organisations, and only when proper, proven safe-guards are in place.  These experts are part of Public Health England’s Office for Data Release. No data that can directly identify you is ever released without your permission, or unless the organisation requesting it can prove that they have been given legal permission for obtaining the information and can show evidence of adequate data security. It is never sold. To find out more about who can access your data, and in what form or level of detail, click here

We currently provide data to the following organisations for specific research projects they are undertaking:

  • NHS England
  • Cancer Research UK
  • Macmillan Cancer Support
  • Teenage Cancer Trust
  • National Cancer Research Institute
  • Association of British Pharmaceutical Industry (ABPI)
  • London Cancer Alliance
  • Health Data Insight Community Interest Company
  • Royal College of Physicians
  • Royal College of Surgeons
  • Transforming Cancer Services London

You can find out more about these research projects here