NCARDRS rare disease collection discovery phase webinar – September 2021

This webinar took place Thursday 23rd September 2021.

Mary Bythell, Head of Rare Disease Registration at NDRS gave an introduction to the National Congenital Anomaly and Rare Disease Registration Service (NCARDRS) which is part of NDRS. She then spoke about inherited metabolic disease specialised services.  

Peter Stilwell, Higher Rare Disease and Cancer Analyst and Hanhua Liu, Senior Cancer Intelligence Analyst at NDRS then spoke about their HLH work including cancer outcomes.

Megan Rutter, Clinical Research Fellow at University of Nottingham then spoke about the RECORDER Covid-19 findings.

This webinar was recorded and you can watch it here.

You can see the slides here: Mary Bythell, Peter Stilwell & Hanhua Liu and Megan Rutter