The NHS Cancer Quality of Life Survey

What it is and how NDRS are supporting it.

The Cancer Quality of Life Survey is being run by NHS England in partnership with the National Cancer Registration and Analysis Service (NCRAS) which is part of NDRS. A survey provider called Quality Health is supporting the process by managing the survey invite and response system.

The aim of the survey is to find out how quality of life may have changed for people diagnosed with cancer. The survey aims to see where care is working well and not so well, and if any new services are needed. To do this, we’re asking how people who have experienced cancer are feeling and comparing their answers with information about their cancer diagnosis and treatment. This will help us to improve the way we support people to live as long and as well as possible.

Do I have to complete it?

No, you do not have to complete it but if you do, the more information we get back, the more we will know how to support people affected by cancer in the future.

I don’t think I should have received the survey.

We apologise if you think you have received the survey in error. Please contact the Quality Health helpline on 0800 783 1775 to inform the team there who can remove you from the list.

Where can I find out more?

You can find out more information about the survey on the NHS site here.

I can’t complete it online.

If you would like help to complete the survey over the phone, including in other languages or would like to request a large print copy, please contact us by calling the free helpline on 0800 783 1775, or send an email to helpline@quality-health.co.uk.

What happens to my answers to the survey?

All the survey responses are being held by NCRAS and linked with information related to each person’s diagnosis and treatment. This will help us understand if there are any specific support needs for people with certain types of cancer. The findings will be shared with NHS England colleagues who will use it to inform changes to cancer treatments and services.

If you have any other questions about the survey, please contact the survey helpline on 0800 783 1775.

If you have any questions in relation to the cancer registry and your information, please contact NDRSengagement@phe.gov.uk.