Can you sell the data you hold about me or my cancer?
No. It is against Government policy to sell any data that identifies you either directly or indirectly. The National Disease Registration Service does recover the cost of providing the data to researchers to ensure public funds are spent in the best way, but we do not profit from this.
Researchers can access data that can identify individuals for certain medical purposes, such as checking the safety of particular treatments, but data is only released to them if certain, very strict, criteria are met. Find out more here. People sometimes ask if insurance companies can access the data, or contact you. Again, the answer is categorically no. Without legal permissions and a genuine medical purpose to use the data or your written permission sharing your data for this use would be illegal.