If I ask for the data the registry holds about me why must I collect it in person?

Data security is of the utmost importance. If you want to see what data PHE holds about you they will send it to your GP or the clinician who is treating you; provided they know you and can confirm your identity. If you want to do this, click here for more information. The information will be sent to them, but, they will not open the envelope containing the details PHE holds about your cancer.