What information is recorded?

National Disease Registration Service (NDRS) collects all information relating to your disease that can help us build the bigger picture. So, they will record basic information like the type of cancer you have, where its primary location is, and whether it has spread to any other parts of your body. They also collect information about you, such as your age and risk factors and whether you smoke, because these can also influence the likelihood of you getting the disease. This helps NDRS advise the wider population on steps they can take to prevent the disease.  The data comes from a range of sources such as pathology labs or imaging reports, the records of when you had hospital appointments, and the reports from the team of specialists responsible for your care.