The NHS Cancer Quality of Life Survey

What it is and how NDRS are supporting it. 

The Cancer Quality of Life Survey is being run by NHS England in partnership with the National Cancer Registration and Analysis Service (NCRAS) which is part of NDRS. A survey provider called Quality Health is supporting the process by managing the survey invitations. 

The survey aims: 

  • to find out how quality of life may have changed for people diagnosed with cancer 
  • to see where care is working well and not so well, and if any new services are needed 

To do this, we are asking people who have experienced cancer how they are feeling and comparing their answers with information about their cancer diagnosis and treatment. This will help the NHS support people to live as long and as well as possible. 

Do I have to complete it? 

No, you do not have to complete it. But the more information we get back, the more we will know how to support people affected by cancer in the future. 

I don’t think I should have received the survey. 

We apologise if you think you have received the survey in error. The survey will be sent to people who has had a diagnosis of cancer or undergone investigation for a suspected cancer in the last 18 months. If you do not feel the survey is relevant to you, please just ignore it. Or you can contact the Quality Health helpline on 0800 783 1775 to tell the team who can remove you from the list. 

Where can I find out more? 

You can find out more information about the survey on the NHS site here. 

I can’t complete it online. 

If you would like help to complete the survey over the phone, including in other languages or would like to request a large print copy, please contact us by calling the free helpline on 0800 783 1775, or send an email to helpline@quality-health.co.uk. 

What happens to my answers to the survey? 

All the survey responses are held by NCRAS and linked with information related to each person’s diagnosis and treatment. This helps us understand if there are any specific support needs for people with certain types of cancer. The survey findings are shared with NHS England colleagues to inform changes to cancer treatments and services. 

If you have any other questions about the survey, please contact the survey helpline on 0800 783 1775 

If you have any questions in relation to the cancer registry and your information, please contact NDRSengagement@phe.gov.uk. 

Webpage last updated: August 2021