Every person who receives a cancer diagnosis should be informed about the cancer registration process, including how their data is used and that they have the right to opt out if they wish.
Cancer Registration Leaflet
We have made a leaflet to make sure that information about cancer registration is relevant and accessible to patients, carers and the public. The leaflet gives information about:
- what is cancer registration?
- what information is collected?
- is my information secure?
If you work for a hospital or a clinic, you can order printed leaflets to give to patients. You need to order at least 50 leaflets.
To order leaflets, please contact us and tell us how many leaflets you need and the address of your hospital department.
Digital version of the Cancer Registration leaflet
We have developed a digitally accessible version of the Cancer Registration patient leaflet. You can download it here.
Over the next 3 months, we are working with a number of trusts to pilot different ways of distributing the digital leaflet to patients and to help develop guidance for all trusts.
If you work for a trust and you would like to take part in the pilot, please contact us and we will send you the digital leaflet and more information.
If you are part of an organisation and you would like to host the digital leaflet and information about Cancer Registration on your website, please also contact us.
Teenage and Young Adult Cancer Registration Leaflet
We have made a cancer registration leaflet specifically for teenagers and young adults. We are currently updating the leaflet and will upload this when it is available.
Please contact us if you require a copy of the leaflet in braille.
National Congenital Anomaly and Rare Disease Registration Service
Information for patients about the National Congenital Anomaly and Rare Disease Registration Service (NCARDRS,) including how your data is collected and your right to opt-out for yourself and/or your child can be found here.
Web page last updated: April 2022