We are recruiting a clinical lead for the National Congenital Anomaly and Rare Disease Registration Service (NCARDRS)

We are looking to recruit an outstanding individual to be clinical lead for the National Congenital Anomaly and Rare Disease Registration Service in England and work in partnership with Public Health England.

Disease registration is central to public health and healthcare.  NCARDRS employs over 50 staff and we collect and quality-assure data on all congenital anomalies diagnosed in England and are expanding to do the same for rare diseases.  We provide expert analysis and interpretation of the data we collect and it is used as a source of intelligence for patients, clinicians, public health, health-care performance, research, and commissioning.

You will report directly to the Registry Lead of NCARDRS and provide clinical oversight of the collection, coding, classification and quality assurance of data collected by NCARDRS. We will look to you to help us build effective partnerships with data providers to secure efficient feeds of high quality data and support the reporting and dissemination of NCARDRS findings.  You must provide inspiring leadership, have knowledge of disease registration and clinical expertise in congenital anomalies and rare diseases.

Funding will be provided to buy out individual PAs (up to 4 PAs/ week, with a minimum of 2 PAs/ week, applicants for job share or flexible working will be considered) and will be negotiated with the substantive employer to fit with the individual’s job plan. We will provide administrative support and reimburse reasonable travel expenses; appointments will be until 31 March 2021 with the view to extend, funding dependent.

Further details are provided in the job description.

Applicants should submit a current CV and covering letter explaining their suitability for the role and outlining what they will bring. Applications should be received by 5pm on the 20 March 2020.

Should you wish to have an informal discussion please contact Registry Lead Sarah Stevens.

Proposed interview date Wednesday 1 April 2020